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Archive for the ‘pain management’ Category

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At last, the first glimpses of a return of life from its beautiful but inaccessible wintry slumber, reviving hope to reconnect soon with much of my much-loved natural world!!

With my aching and relentless desire to be reconnected with the earth, my life force , the essence and source of all that connects me to the world and makes me feel deeply and truly alive, for even brief moments, now gift me with revived hope and renewed spirit and confidence, feeding my soul, soothing pain, promising a lengthier reprieve from protracted confinement in this erstwhile shelter from nature’s less wheelchair-friendly elements that would put mobility and access to that life sustaining force at risk altogether.

So for today, at least, I have this beautiful glimmering potential of things to come, that is enough to trigger my eager anticipation that opportunities to escape this cage soon, and returning to my natural world are in my near future ! Yay!!

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I really hate ever being forced to give in to collapse, even in the most difficult times. I’m one who usually sees a glass 2/3 full in any challenged situation no matter how bleak it may seem but sometimes God proves like this week, that I also have human limitations on seeing the gifts in the throes of enough obstacles and illness.

I have tried to remember when I feel really bad and in bad pain or sickness or when smacking a brick wall that by stepping back, resting truly resting, recouping my strength, I can see that my rules for tough times are still truth–>facts, and the rest, the negations I feel and express are fiction stories that only express what I am feeling now, and that the best thing I can do, no matter how necessary it seems to me or pressure from others to try to force myself to try to fix it right then, it is the worst thing to do 99% of the time, and if I push too far, I will fail, one way or the other, and make things worse for myself, maybe others too. It is a bad habit that, like many adaptations, began of necessity and enabled me to survive, and do extraordinary things, that seemed impossible to do, because someone’s safety or well-being, or my desire to do the right thing to help others who were counting on me, and little time to find easier solution, or fundamental justice demanded I stand up and ignore pain, fear, weakness whatever, to make the impossible happen.

And with a clear mind now, I know that a price must be and was paid for all of those choices to force myself to keep pushing on, not heeding the signs that I was risking damage/harm if I didn’t slow down. But when there is a higher cause, something greater than myself that requires it, duty, responsibility, honor, truth, dignity, needs of others, the emotional negative fear doubt expression is blocked out entirely, as is pain for that time. The gifts that I tapp in those circumstances don’t yield to the flesh only to my driven imperatives, never without cost–some immediately felt, others greater in the fullness of time yet to be written and experienced. Some bills have now come due, yet if it was for a greater good, I hear my mental stories as good and right and see the price as reminder of the good that it did, though I am truly now paying.

Though I know certain things about balance and letting go of unhealthy imperatives even temporarily, as necessarily true, or that clearing my head will enable me to find my way through problems no matter how forever things feel at the time, recognizing that I’m depleting myself but if it’s my need or plight that needs super-human strength, perseverance, and letting go, when that has time consequences, or would cost too much and not likely to succeed, I can’t accept, acknowledge or apply these rules that I know are always true for me, whether I wish I could or not.

For a few days recently, I could mouth those truths like mantras, over and over, yet they still felt false and pointless, meaningless and no longer applicable, and so couldn’t see through my fog or believe there was a healthier way that would yield better results myself that would alleviate my despair, which is quite rare.

So now, after sleeping for all fr 5 hours (marathon for me), I now remember the other thing that is maybe the most important self-talk truth, that I’m supposed to hold fast to, in the very worst of those/these times, enabling me to accept the truth that all of it still holds true and is a greater imperative which is:

A) your survival and function IS for a cause greater than yourself. If you fail to persist how can you create a grater good? What is happening right now, can fall apart and the world will turn and you will,still be better able to turn it around best if you get distance and rest from it, even if that means things fall apart more before,they get better.

B)when I feel really the worst, I might not believe that these things are the Truth, but that is not the meaning of what I think and believe really. It is just a form of expressing my pain and fear, yet to my literal mind, I am holding to,the literal meaning because that is intuitive therefore easier for a lazy brain to think. Non-intuitive things are much harder for a brain, take more energy and effort, and when depleted, it is effortless and easiest to fall back on habits, and then the brain renders maladaptive what was, in some situations, adaptive and effective at the time. To think actively of accepting and following the imperatives for self-preservation is a very difficult task, and not intuitive. despite kmowing intellectually that sometimes to solve a problem you have to leave it, the stakes and pressures from without and within that push me in the opposite direction, and there are consequences for letting go and backing off a problem at times, perhaps dire, if I don’t push forward, yet the alternative is more likely that options to mitigate I can’t see in the fog.

Yet internal imperatives must take priority over pulling on beyond capacity, even when there are consequences to setting aside when needed. If I am consumed now, in this moment, engulfed in fog, pain and despair, and the problem must be solved but cannot be solved just now, I must make available to me a message, generic, that can be perhaps be shared with others, like a beacon from a stranded vessel,, that I am still here, but in this state, have a problem, and imperative,there is some necessity that is demanded of me, but it is beyond my control to act as required, and ask for either a postponement for emergent reasons, or defer to others to do their best to step into my shoes in taking on certain tasks, leave what tools and info I can to enable them, and letting it go until I am more capable of taking up my sword again.

Sometimes it is stronger to give into frailty of body and mind to restore myself first. It is necessary to find solutions that will be more accessible to me, if I just STOP and let it go–through me and me through it–, and accept that my inner guide message is telling me true and still points me away from the wrong path so that I can see the right path after the fog clears.

The other messages are just a sideways way to express pain, fatigue, insecurity, fear and sickness–no more–it is deceptive, and blocks my vision, makes me disbelieve what I know is truth. The expression is not literal truth, but it is telling a different truth; it is just my body saying “I hurt, I’m sick, so I can’t think or see problems well enough to feel comforted or see that things will and always do change and get better, worse, better, come and go, like the tide.

Remember that I still tend to say, like a child, “I hate you/this/everybody,” but that’s not literally true either. I’m expressing by that, merely “I’m really upset about something so much that I can’t think of how to express that well in words. ” im a picture thinker, and under enough pressure or exhaustion or fear or pain, words fall away or fall apart. A little pain and fear can refine one’s focus, but when they are severe, they distort expression and perception. This is your absolute signal to STOP!!! Rest recoup restore regroup reconsider, then act!

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Kali…..
….. is my petite cat’s name. Sundeep, my son, named her when he got her as a young kitten to spare her from an impending execution. Considering the circumstances, her name, Kali, is associated with a tremendously powerful and significant namesake, which I think quite apt, if not seemingly over- expansive for this diminutive in size, yet formidable huntress, and presence inside and outside our home since she arrived many years ago. She still looks so young!!

Yet from the vantage point of Hindu sacred writings, and from real life, it is obvious to them and to me, at least, that these bodies are mere vessels for each life using them for a time, and what we see as a simple little creature from the outside is often quite illusory, so who really knows what is concealed beneath her shell? Who am I to presume to know? Is this cat something beyond her corporeal existence? Most def, IMO, but who is to say with certainty what or who she is or is not? For all I know, I may have been enjoying the company of a goddess all these years, who was quietly sharing her time with me, which would make just as much sense, given the Goddess’ special qualities relative to time, life, energy and death ;-). Whatever or whomever she is beyond the shell, she has done these things nonetheless, and more!! Gifts come to me–do I notice properly? Have I lived in gratitude? Does my “becoming” reflect expansion of my gratitude? If so, then it perhaps was not a squandered gift, and perhaps will one day expand to a fuller measure that fills up most my remaining time and thought in my shell-leaving less room for the human frailties that come from suffering, weakness and fatigue of spirit and body, betrayal, insecurity, fear, and loss. One can only hope. I tenaciously persist in hopeful ambition that Iight continue to grow and learn and evolve and rise above these cages of my life, neither accepting nor rejecting self or other, but remaining open to possibility. Time will tell…

From Wiki: Kālī (Sanskrit: काली, IPA: [kɑːliː]), also known as Kālikā (Sanskrit: कालिका), is the Hindu goddess associated with empowerment, shakti. The name Kali comes from kāla, which means black, time, death, lord of death, Shiva. Since Shiva is called Kāla—the eternal time—Kālī, his consort, also means “Time” or “Death” (as in time has come). Hence, Kāli is the Goddess of Time and Change.

Although sometimes presented as dark and violent, her earliest incarnation as a figure of annihilator of evil forces still has some influence. Various Shakta Hindu cosmologies, as well as Shākta Tantric beliefs, worship her as the ultimate reality or Brahman. She is also revered as Bhavatārini (literally “redeemer of the universe”). Comparatively recent devotional movements largely conceive Kāli as a benevolent mother goddess.

Kālī is represented as the consort of Lord Shiva, on whose body she is often seen standing. Shiva laid in path of Kali, whose foot on Shiva subdues her anger. She is time manifestation of other Hindu goddesses like Durga, Bhadrakali, Sati, Rudrani, Parvati and Chamunda. She is the foremost among the Dasa Mahavidyas, ten fierce Tantric goddesses.

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Unblinking The Moments

Death..life…
Being…becoming…
We are beautifully the same….thank you for the gift!

(from my backyard)

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*A Moment of Your Time?

*A Moment of Your Time*

Perfectly on time, in and out, each has its own time,
As we arrive at a moment, it departs; a moment waits for no one.
It carried a gift for you; did you drink it in, or blink? It’s gone!!

I confess I was busy thinking in the wee hours this day, with my service dog Ben..moments only but the moments are all we really have, not yesterday or tomorrow, and that quiet sacred still time when I can just be there with it, the connection and energy is palpable!! And was intoxicating!! Not much blinking, just treasuring something better than drugs, booze, money, or even working legs and eyes!!!! If I still had my legs and eyes, would I have been feeding my soul with moments, like they were nectar of the gods? Would I appreciate moments as I do now?? Doubtful. I was always running. But instead, today, we enjoyed our time with the deer, possums, a raccoon, birds, a snake, and other creatures of the night!

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This is what I’ve been talking about for ages, and this blogger puts it so well that I want to reblog. Lots of great info on C-PTSD here (part of my “menu” of dx)

C PTSD - A Way Out

Neuroplasticity occurs inside us everyday as we encounter new experiences. On the right you’ll see several photographs of neural circuity in the brain. From the left the pictures show us the neural circuity of a newborn, then a 3 month old, 15 month old, and 2 year old. As the child ages, their brain’s wiring becomes increasingly more complex and interconnected. Neuroplasticity is what allows us to take our experiences, then learn from them and form new memories. Huge changes are occurring in the brain during these early stages of cognitive development, but the truth is that our neural networks continue to build on each other until the day we die.

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I’m sure that it was noticed that I had to stay offline for a while. Why was not because of lack of motivation, desire, or enthusiasm. In fact in early 2010 I started losing ability to regulate vision, along with other sensory stuff, and I was lemonade especially around using computers are looking it anything with backlighting , and now I spend much of my time virtually in the dark. Recently I’ve been able to start doing some things online that I like this, using speech to type, and trying to grab some energy to continue to do artwork even in the dark, or at least extremely low light. Having “old people eyes”, that has a very finite tolerance period, as well, However I have explored frequently doing my drawings completely in the dark. When I’m at the doctors office sometimes I sketch while blindfolded from the harsh lights, using only my fingers of my op. cit. hand to the gates space and location on index cards. I’m always amazed at the drawings themselves that they are as coherent as they are. At those times I just draw what my mind is looking a.

I have lost some vision, some control over my vision, now intermittently have brief periods of total blindness and it has begun to affect other functional things like speech, so I’ve definitely had to make some difficult choices to preserve the function I have, and continue to do things that I love and be able to do them in the future. Blind services is working with me now, and I’m discovering more ways to express myself and connect, even from my bubble!!

I was one of his children, who was always afraid of the dark. It took a long, long time for that to change. And then this. There are no monsters that are chasing me now, or hiding in my closet or under my bed anymore, but I did want to make it a permanent part of my life, either. However at this point in my life, there’s been so much change over a half century, that I’ve almost become habituated to adjusting or adapting. like some sort of accelerated evolution. Each kind of change has inherently it’s own darknesses, and fear-evoking potential.

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While I can only speak for myself, I found that rather than fighting it, whether it involves tearing down, breaking down, unraveling, deconstructing, reconstituting, recycling, repurposing, rebuilding, cyborging in ways that I would never have found them until I was there, embracing the darkness when it comes, facing things for which there are no handy or convenient answers or solutions despite sometimes great fear, for me, by letting myself sit with it and not turn away, i e been able, quite to my surprise at times, that I was led to find, in those dark places, not monsters, but rather very important missing pieces of myself that really mattered, and needed to be processed and integrated. The darkness that I feared WAS me, too, and what I was avoiding were lost facets of myself that needed air and space. 🙂

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Being able to get so pulled into something that time and the world dissolve away, for example, was something that I always felt guilty about, because I had no sense of time space or physical needs. Now I’ve discovered that is a part of a larger gift, too. IIssas trying to tell me something important about what I need, my abilities that i have (vs disabilities or flaws), and is a beacon to things that I am passionate about, and really want to do, that I truly connect with, not merely things that I imagined I’m supposed to do or want to do.

External goals and structuring, for me, inhibit creative expression, so I just go with flow, and trust the process. What comes out is what needs to come out; my art is always trying to tell me something, as does everything that I do. Understanding the message may take more time to cook, but I think that’s how it needs to be for me. Whatever I am creating, external agendas and rigidly self-imposed ones, as well, inhibit me, and when I stop trying to control or don’t let others do that, my creative flow goes, and somehow always seems to work, however imperfect they may seem to the outside world, whether essays, posts, songs, singing, poems, or visual art, the best things come for me, when I let go to size the pool and I let go of the steering wheel and stop trying to drive the bus. Just trying to see what happens when I let go, always produces something interesting..

For me, it’s not about shutting out the controllers and critics who also have space in my head, or steeling myself to face that darkness when that child part of me is screaming, “run away!!” Giving space and focus to all of it when it comes, when it’s time, all feelings are liberating when they are given a place at my table. In my experience, if you’re lucky enough to have the ability to get lost in the process, I say fabulous!! Its a great gift!!! Give it room to grow!!

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This is a quick 10 min pencil sketch of me last night.

Then I read this post that our lives are the products of our choices. Partly true but not entirely.

Some days JUST SUCK and there’s not much you can do sometimes to Prevent the sucky part, and you just have to ride it out. Yesterday and the day before I’d like to erase from my calendar, but eventually I won’t feel the same. For now, still in the SUCK zone till I’m done.

Ok I’m responsible for MY choices, including how I feel/what I do within my ability, about others’ choices that affect me, but unless blaming & judgment actually contributes to solution (now or future), that’s the extent of its value for me. But it also depends on the tools that I have to work with and most people don’t l know how to change their toolbox.

Important not to discount perspective about how injustice kept hidden can shape a human being profoundly. The right to articulate one’s perspective about a happening is very important–and more, to be heard. Sometimes that can make a problem a non-problem or prevent getting stuck with hard-wired blame/shame reflexes.

Theoretically, one can CHOOSE, provided their brain is physically hard-wired intuitively to do that; if not, it is possible to rewire, but only with intrinsic motivation and a minimum of ~ 6 months of relentless practice, step by step over and over. Worth it?? For me yes, but I’m not hard-wired to fall back on cognitive distortions as much as other people. Always open to an impressed when I see people develop this who didn’t develop it growing up.

Even then, cog biases as like muscle memory–your brain WANTS to do what it’s used to doing-unless something has tipped the scale that changes the priority, we fall back on defaults and still do when we’re tired and hurting and no resource to focus energy on doing something vastly different. And it’s why I forgive daily other people who do things in ignorance when the red flags and clear facts were in their hands. Eyes can’t see what filters block.

Bottom line: it’s not quite that simple to weather a storm by ordering up a sunny disposition–can’t hurt, and if authentic it helps when you’ve got nothing else. But it just doesn’t show up like fast food; it’s like an acquired taste for a dish that takes a long time to prepare, and skill of a fine Japanese sword maker. Great ideal, though, and the journey for me is worth it however close I get.

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